The vivacious youngster regularly speaks and campaigns for Children's Hospital Los Angeles as well as smaller organizations such as Saving Tiny Hearts in Chicago. Max also visits children in the hospital and has become something of a role model. He takes his responsibility seriously since he also looks up to someone -- snowboarder Shaun White. He has yet to meet the Olympic gold medalist, but he says he will have a lot of questions when he does.
His mom watched White compete in the Olympics the same year Max was first diagnosed, and after hearing from doctors about the limitations her son would face, she says she found hope in White, who has the same heart defect.
"I remember watching, and the significance for me was that Max could have energy. We could actually focus on hope that Max could have energy, and it was actually possible," she says.
She adds, "I looked at what his (White's) parents must have had to do to let him live so free. Because I just want to wrap Max up in bubble wrap and not let anything touch him. And they didn't. Shaun White's parents said go for it"
It's been seven months since Max's last surgery -- an open heart pulmonary valve replacement -- and he has been cleared for all activities by his doctors. He's back campaigning for the hospital, and he's learned to snowboard and also plays Little League Baseball. Soon he'll even return to his role on the CBS soap "The Young and the Restless."
In his own words, "I'm back to being me."
His mother says that she and his father try to lead by example but attributes much of the boy's positive attitude to Max himself.
"There's just this innateness in him that says I'm going to fight, I'm going to conquer it, I'm going to win. From the very beginning, he's had to fight. From his very first breath, he's had to fight hard for every breath, and ... I think that is just part of his nature."
While he was the breakout star of a previous Super Bowl, this year Max will be watching the game at home with his family. He says he's a bit overwhelmed with his two favorite teams competing against each other.
"I'll win and I'll lose. So I'm not going to root for anyone," Max says. "I'm just going to hope it's a good match."